Last night my Mom got a call from Katy telling us know they were meeting Haleigh and her Dad at the ER. Her legs were swelling up and her left arm was hurting so much she did not want to move it.
Adam being a PT was very concerned for her because he said it sounded like it was her heart. We patiently waited for the updates to know how our little Haleigh was. She was admitted to the hospital and was waiting for the Dr at 10:30 and by midnight, the dr said he did not know what was going on and waited her Transfered over to childrens.
By 5 am she was relased and sent home. What they found was that she has Henoch-Schönlein Purpura (HSP). Her legs are still very swollen and she will be at home for at least this week and is not suppose to be moving around. A lot of TV Time for that little girl.
Monday, October 19, 2009
Our little Haleigh
Posted by Mary at 8:17 PM 1 comments
It's been a week
Last week was not too bad for us. Kodi did have some melt downs but the more I read about Sensory Processing Disorder the more I understand how to help him out. We are trying to get him tested for SPD but the insurance is not sure if it is under mental health or not. But he is having a great time anyway. We are still trying to figure out his sensory room. I did today go and get a very cool new bounce toy for him. It's a little tykes bounce and spin toy, he loves it.
Kingston is Kingston, I am not too sure how I like his little attitude he has, and he is learning that I do not put up with a lot of his screaming or hitting me. Today he has really let Kodi have it, and has spent some time in the time area.
Aaron is doing well, he is still in the ER for the last two days and really does enjoy everything he is learning.
Really not much has been going to since the last time I posted. We head down to pick up Aaron on Thursday and than we have Daddy back for 13 days before he heads out for another 4 months of training.
I am not looking forward to that at all, but with prayers and my faith, I know our little family will get through this long period away from each other.
Posted by Mary at 8:09 PM 0 comments
Monday, October 12, 2009
Another Week down two more to go
We had a wonderful week ending with Aaron coming home on Friday and will be leaving this afternoon. We have loved Daddy being home, being able to play and feel like a complete family. Our boys are so very happy, Dakota has not left Aaron's side, at all expect for the the Birthday Party he went to yesterday. It was his very first "friend" birthday party. I was not sure how well he would do but as I walked over to our neighbors house I was talking to their Dad and he said the party was a great success. All the kids play very nicely together Kodi was a great little partier and no problomes:)
Posted by Mary at 7:59 AM 1 comments
Sunday, October 4, 2009
First week of Preschool!
Well the first week of school is down, and he loved it. Dakota was a little disappointed when he did not go to school on Friday. Needless to say he drove me crazy on friday. I love that he goes to school for 2.5 hours Monday - Thursday, but I don't know what do with him on Friday, Thankfully Aaron will be home this friday and that wont' be a problem.
I also went to see his new Therapist to help him with Aaron being gone, I can't wait for him to start seeing her and for her help. We will be going again on Friday with Aaron. Dakota is doing much better, we had a great week. He did not have any screaming Fits, I have stopped all his TV watching and now he only gets to watch either Playhouse Disney or PBS. Which he doesn't mind at all. I also have been working on making the playroom a sensory room for him. It's a HUGE task to take on but he really needs it.
We are looking at making a ball pit for the corner of the room, and than maybe to put up a swing for the rainy days and when the cold winter comes. Aaron will be putting up the fish light for him in the sensory room and making it more a comfort for him. I am totally grateful for all the help me gets from his therapist. They truly are a blessing to us. I have been doing his sensory diet, brushing which is now down to 4 times a day, and using the oil Mood Magic for men, which he likes to put him his feet. All of these things are making a HUGE difference in him. He is also able to tell me when he needs to go outside and swing, which is a true blessing that he can express when his body is needing that. He is always a much happer little boy after we have been swinging. I have learned that we will need to get another dark swing from Ikea for KK loves Kodi's swing, we have many fights over the swing and KK is the one who doesn't win. :(
He is working so hard, on everything he is learning. I have been doing a lot of reading on Sensory Processing Disorder which is making a whole lot of sense to me. It is explaining a lot of why he is melting down and how I need to help him out. I bought two books one is The Out of Sync Child and I can't remember the other book. I am reading the The Out of Sync Child and Tara is reading the other one. Than we will switch and read the other ones. I am grateful for all the resources that are here for us to use.
Kingston has decided to cut 6 new teeth I got him to sleep in his toddler bed next to my bed and than he started to cut his teeth. So of course he is back in our bed and right next to me. Which means I am not getting a good night sleep since I am switching back and forth from side to side. My hips are hurting most of the night, and than I have KK wanting to have me cuddle him. KK is growing so much he is already wearing 24 months and some 2 T clothing. He is a bean poll, but he my saving grace at times.
He did a great job at Kim's house on Friday when I went to see the Therapist. He was a trooper and even took a nap:) Which he never does when we are out at peoples houses. He also will eat anything you feed to him. He loves tomatoes right now and will ask for them, I dont' know where he gets that since I don't like them at all.
I am hanging in here, I am gratful that Aaron is coming home on Friday and will be with us until Monday afternoon. Than we have two weeks left of "A" school and we than go down and get him. Our time with "A" school is coming to and end, and it's been a long road, and when I look at it went by some what fast. I am getting bigger out little guy Peyton is growing and letting me know he just like his brothers. Kodi loves to talk to my belly and "wake up" the baby. KK will even say "baby" and point to my belly.
Well that is about it for this past week. I think I am doing pretty well if I update once a week, I am trying to get back to posting daily but who knows with the way Kodi acts up.
Posted by Mary at 12:31 PM 1 comments