Wednesday, February 24, 2010

Home Sweet Home

Yes we are finally home :) It's been a very long 3 weeks for us. Peyton is doing great. For those who don't know. Peyton was kept in the hospital for an extra week because of some damage done to his treachea while he was on the ventilator. So we had to wait for the little dead skin to fall off and the ENT wanted to make sure we were in a "safe" place when that happened.
I am so very grateful for all of you who were praying for us. The prayers truely did work, Peyton was suppose to be still in the hospital this week, but it was a miracle in my book that the skin fell off and he was not in any distress at all. I don't know if I would have been able to handle it.
It was bad enough to have Aaron away when Peyton was put on the ventilator and having to see him and be so very strong for my little guy. I know that the Lord knew I would not been able to handle that again. Because of the skin that needed to come off there was a possiablity that Peyton would have to be back down in the PICU and have a treach put in and have it for 6 months to a year. That still might happen if the skin has closed up to much of his treachea. I really hope not. But we have the Best ENT in the midwest.
Again I am so very thankful for Dr Robison who has helped us from the beginning making sure we are getting the right treatment and the staff was doing a great job keeping me informed.
The boys are so very excited to have Peyton back home and to have Mommy once again. I can't believe we will be moving by the end of next month. Yes it has been a VERY long 10 months and I can't wait for it to be over. These last two months have been the longest, but it will soon be over.
Aaron graduates from FMTB on the 5th and than is off to Portsmouth, VA that same day. We are still house hunting and can't wait to find us a home. Kodi is set on getting another fish and dog. We know he will be getting a fish and not a dog, but soon enough he will find that one out.
Kingston is being a monster lately and trying to push every button of Tara's since she has been watching my boys. But he still love her and will mis her when we move.
I am hanging in and doing my best to keep everything together :)

Saturday, February 6, 2010

Update On Peyton

This has been a scary and exciting week for us, the exciting part would be that Aaron was able to join us while Peyton is down at Children's, and of course the scary part would be having Peyton being on the ventilator and having all the tubes in him. I am very thankful for his little illness just to be RSV and nothing more.
I have come to relay on what the Lord and his comfort while I was at Children's watching over my little one. I have to believe that it's how the Lord feels as he watches over us when we are in a time of need. Feeling scared for his little ones and uneasy as we make our mistakes. I am grateful for knowing the Lord has a plan for us.
The boys have enjoyed having Daddy home and being able to see and play with him. It's going to be very hard on all of us when Aaron flies back tomorrow. I keep praying the flight will be canceled with the huge storm that is hitting the east coast and we can having a couple more days with him and he stay until Peyton is off the ventilator. We are thinking maybe Monday that would happen. I would like to having Aaron still be with us until than, for my peace of mind. Seeing your little one with tubes and lines going into his little body is have hard and stressful on you. I don't do much of anything while I am sitting next to his bed, but hold him little hand or leg and when we get home at night I am so very tried I go right to sleep.
Yesterday was the first time the Kodi expressed any feeling of us going down to see Peyton, it's going to be very hard on him tomorrow when Aaron is not here. I am not looking forward to having to deal with Peyton and Kodi melting down. I am praying the Lord will bless all of us to be able to make it until Peyton comes home.
Peyton is making progress, his laps are doing much better, the CO2 levels are in the normal range and his pH level is normal as well. The x-rays are showing the RSV is starting to go away and clear up, his lungs are sounds a 100 times better and is coughing a lot which is very good.
Thank you for all your prayers we have felt them, and Peyton is getting better.

Wednesday, February 3, 2010

Peyton and RSV

Peyton has given Mommy and Daddy a run for our money and a lot of worrying. He has RSV and was admitted to Children's on Friday afternoon. Our Peds called me Friday morning tellming me that she had been up worrying about us and wanted me to bring him to the ER and tell them she wanted him admitted so they could watch him, the first night wasn't bad and he was doing ok, the problem they were concerned with was he was pulling very hard when he was breathing so he was put on O2 and really didn't do much better all day, well that night was a very bad night for us. They put him on a different type of O2 where it is more forced into his lungs. He was on breathing treatments every 2 hours and it wasn't getting better. Needless to say I wasnt' getting any sleep either since the Dr and Resident were in our room every 1.5 to 2 hours. It was a stressfull night.
I was keeping Aaron informed while he was training and once they decided to send him down to the PICU, I received a call from Aaron telling me I needed to call the Red Cross and tell them I needed him home. So that is what I did and he came home Sunday night.
If I would have known how bad little Peyton was going to get I would have call the Red Cross right away on Friday, but I didn't.
When we got down to the PICU I saw the Dr and he wanted to put Peyton on a Ventilator and his as a central line in his neck. It was one the hardest days on my life, but with the Lord and his help I was able to be ok and be a support for Peyton. Life and my stress level has gotten much better since Aaron is home.
We spend the mornings with the boys and than head back down to the hospital in the afternoon and stay util bed time. He as a nurse 24 7 and they are wonderful. We also have a wonderful member of the church who works and he is making sure they are doin all they can for us. I am so grateful for him and what he is doing for us.
We don't know how long Peyton will be in the Ventilator or how long he will be at childrens.






Sunday, January 24, 2010

Pictures





Kodi at Inara's Party wearing a princess crown







Sonita at the party







Peyton

Sunday, January 10, 2010

Some pictures






Here are some pictures I finally found the camera. Today I weighted Petyon and I couldn't believe that he is 9lbs, he is just growing so very fast, he is starting to get the "baby rolls".



Tuesday, January 5, 2010

Mommy Brain

I had thought that with two boys and being pregnant that my Mommy Brain couldn't get any worse, well I was so very wrong. I can't remember anything to save my life. I was talking to Kodi's OT today about which CD was the next one for us to start, and by the time his sessions was over (which is only 50 minutes) I couldn't remember.
Before Peyton was born I was writing everything down and keeping track of things that way, but even now I can't remember to write anything down. I put our camera up high so Kingston wouldn't be able to reach it and now I have no idea where it went. I was going to try my best at night to get a picture during the day of the boys or at least Peyton so Aaron can see how big he is getting while he is at training and well it's not working so well.
All the boys are doing wonderful, I actually got some sleep last night which I am so very thankful for. Kingston only woke up once last night at the same time Kodi was going to the bathroom so the three of us snuggled in Kingston's bed and they both went back to sleep. Some time during the night Kodi went back to his bed, but it was nice not having to get up and go to another bed.
Kodi is doing so very well being back in school and having his routine down again. I Love it. I dont' know what we are going to do when we move and we will not have a school for him to go to. I have started to talk to his therapists on how to help him out the most with the move, we talk daily about moving and how life will be different and at time he is ok with it and other times he cries and tells me he doesn't want to move. I feel the same way I don't want to leave my family and friends, but at the sametime our family needs to be together. The Lord will bless us and will help Kodi with the move.

Monday, January 4, 2010

8 weeks that is all we have left







It doesn't seem real to me that we are at the last leg of our training and being away from Aaron, but we have 8 weeks left. Aaron checked into FMTB and is not looking forward to this training one bit, for a couple of reasons. Of course being away from us is his biggest reason, he was not happy about being away from us this time. For me having him leave last time was the hardest, but I think with Peyton being here and Aaron not being able to be around his three wonderful little boys is very hard for him.



Speaking of Peyton, he is a wonderful little boy. He has already grown so very much in the past three weeks. He looks more like a new born and not this very small little baby. He is actually fitting into his newborn clothes, and LOVES to eat. I would say Peyton is probably 7 lbs maybe 8 lbs.



Kingston is having the hardest time with Peyton being here in our family. I try very hard to make sure I give him one on one time with Mommy. While Aaron was home Kingston would say Daddy take Peyton. But now that Aaron is gone it's just me again, I was able to just have some good one on one time tonight while I was putting him to bed, we read stories and just snuggled before he went to sleep.



Kodi loves Peyton, and is a very proud big brother. He talks to everyone at school about his new little brother Peyton, and loves to be a help when ever he can. I am so very blessed to have such a wonderful helper.